I remember sitting in the theater, watching Schindler's List. I had a weird headache, it was behind my eyes.
I have had a headache every day since. Schindler's List was in theaters in 1993.
The headaches are of varying degrees of pain. One day I thought "why do I feel different?" and it was because I didn't have head pain and I had a clear head, but the headache returned seconds later.
I recently read if you can remember the very day you got a headache that was significant. Doctors were classifying a new type of headache. I think they just called them "everyday headaches". It was a bit of a relief knowing there were others out there. And when they mentioned remembering the exact day, that was interesting for me because I have always remembered the Schindler's List correlation. Of course, it had nothing to do with the movie. And it is a great movie.
I was given migraine medicine to try. No, not free samples. A $100 prescription. The doctor told me if it didn't help after taking it once, then I didn't have a migraine. If that happened to me now I would insist on a sample, since filling a $100 prescription seems like a waste. And it was. The Rx didn't help.
It was frustrating that any extra income I had (and it wasn't much) was spent on prescriptions. So many of them I didn't even take, or take for long. One prescription's side effect: a headache.
I was sent to a neurologist and given a CAT scan. I went to an allergist and started on allergy shots (one co-worker said "are you going for your shot today? they always make you grumpy"). I went to a infectious disease specialist who basically told me to get laid.
I did try biofeedback and did not like it. While hooked up to a machine you try and relax and get your numbers (shown on a screen) down. But when the numbers where going up it just made me more stressed and I couldn't relax.
My allergist (my first one, she later passed away at too young of an age), when I was telling her that my ribs hurt said there was something called fibromyalgia, and that could be what was causing the pain. This was approximately 1994 or 1995.
I did not have much access to the internet. A few years later, when I had a job where I could get on the internet, there was very little information about fibromyalgia.
I was continuing to see doctors for stomach aches and general fatigue and no one mentioned fibromyalgia. One day I said to my GP- could I have fibromyalgia? He didn't know. He sent me to a rheumatologist, who after examing me for a few minutes said "Looks like fibromyalgia. That was a great reference from your doctor."
I didn't have the balls to tell him it was all me, my doctor had nothing to do with it.
It continues...